Monday, May 26, 2014

Blah blah blah

My body  is letting me down. I am grateful that I do not have a terminal disease and that the doctor today did not send me home 'cos of that, saying he would have to go back to the drawing board (metaphorically, he never actually used those words) but I do realise that there appears to be nothing that can be done to improve my stomach.
I went on Resolor, which involved getting permission from the Medicine Controls Council here in South Africa, but it didn't work. I still have a bloated stomach. I have tried everything. Not eating foods high in fodmaps and that doesn't work. I have been on endless amounts of antibiotics and that doesn't work. Today he prescribed spasmo-canulase which doesn't even need a prescription. Quite a change from the resolor and rifaximin which also isn't registered in SA but can be obtained at a pharmacy in Bryanston.
Meanwhile my stomach is mostly bloated like a balloon - like the rifaximin at first, resolor had some improvement as it stopped the bloating immediately below the boobs but that didn't last. And I have flatulence and burp and have this burning feeling in my upper chest which the GI-doc today said is regurgitation.... and ...
But it doesn't stop there. Saw The Lymph Lady today and my arm is a f.. disaster/. Up by half a cm or 1cm in all of the six places she mentions.And I didn't even realise it and we don't know why.
Did consider the meds - Resolor - but it doesn't seem to have that effect although going to google it further.
Am in despair. I don't want lymphedema. I don't want to wear a sleeve. I need to get my stomach sorted. Urgent.

PS. I don't have to wear a sleeve yet. Am seeing The Lymph Lady again next week.


  1. I think that it might be more difficult to have your persistent symptoms than having cancer. At least with cancer, there is a set protocol for treatment. This sounds like nobody knows what is causing the situation. I hope somebody gets you the treatment you need.

  2. Hi Gillian,

    Thank you so much for your blog. It is inspiring. I also need Rifaximin and am in South Africa (Pretoria). I haven't been able to find it here. Could you please let me know what pharmacy you got the meds from? And, were they super expensive?

    Kind regards and good luck!


    1. The pharmacy is in bryanston, is called the compounding pharmacy and it's number is. But you do need a script

    2. Published too early. The no is 011 4630310