Showing posts with label atypical endometrial cells. Show all posts
Showing posts with label atypical endometrial cells. Show all posts

Monday, March 11, 2013

Gynae vs pathologist: hysterectomy?

Looking at my description of myself below my photo on this blog, I realise it is all out of date.
Instead of the carefree picture I paint, one which was certainly true at the time, I am now an angst-ridden wreck. I used to worry about my arm because I have borderline lymphedema but now I have a bigger problem, a dilemma really.
I am on tamoxifen and have always known it can cause endometrial cancer but felt the benefits in helping prevent a recurrence of breast cancer were better than the small risk. And, I was informed, it is a slow-growing cancer so we can monitor it carefully.
Sure, now about four years since I have been on tamoxifen, my six-monthly endometrial biopsy, known as a Z-sampler, came back with atypical cells (SEE PATHOLOGIST'S REPORT BELOW). My gynaecologist or gynae (Americans who are reading this, you call them obstetrician-gynecologists, or ob-gyns) phoned me on Friday morning to say that last Tuesday's test showed I had to have a hyterectomy, and my oncologist, The Tango Man, agreed.
Well. Today finally got to speak to The Tango Man who told me there were cells that were suspect but many more that weren't but that the gynae felt it was best to just have a hysterectomy and sort it all out.
However, when I arrived at the gynae today to discuss it further and book my operation for Monday, was almost horrified to discover that the pathologist's report recommended a formal D&C. Not a mention of a hyterectomy.
Suddenly I feel less sure. He says the pathologist didn't know my full history, that the atypical cells are suspect - and true, The Tango Man did say to me that the hysterectomy could find early-stage cancer - and that I could end up with a tumour and then I would be in trouble.
"You are playing with fire," he warned.
But he also suggested getting a second opinion, either from someone of my choice (which I don't have, as he is my gynaecologist of choice) or from the head of obstectrics and gynaecology at Wits University, who is also a cancer expert.
So now this is the situation:
I have booked the hysterectomy for Monday;
I am seeing my gynae on Wednesday midday; and
all my reports etc have been sent to this Wits prof, and I have to phone him on Wednesday at 9.15.
And I am in a hyperventilating state.
I wish my father were alive so I could ask him (he was a doctor). My mother too, for motherly advice. I feel a mess. 
                                         _________________

Ag, just spoke to my one sister instead. She made me feel better. Made me feel I am doing the right thing. She also thinks a hysterectomy seems harsh.
                                         __________________
THE PATHOLOGIST'S REPORT:
"There are scattered groups of markedly atypical endometrial cells present whcih are suspect for underlying endometrial neoplasia....
There are, however, also numerous groups of relatovely normal appearing endometrial cells in the background.
COMMENT:
A formal D&C is recommended for further evaluation of the patient.
DIAGNOSIS:
Endometrial smear:
1. Markedly atypical endometrial cells present.
2. Endometrial biopsy recommended.


Saturday, September 29, 2012

At last: out-angsted

I have been horribly anxious. In fact, developed flu as a result (or so my GP said, when I visited him in a panic on Thursday about whether or not I would be able to have an anaesthetic).
Luckily, now just a mild sinus problem and the GP said I am fine for an anaesthetic.
As reported before, I am on tamoxifen which can make you prone, although the probability is low, to endometrial cancer. Every six months I have this excruciating test in the gynaecologist's rooms, and this latest one came back with "atypical cells". And on Monday I am having a fractional D&C to determine if those cells are pre-cancerous, cancerous, or ok (for now?).
I just did a last - I hope - reading of all the dramas about it all, and now it's up to God/fate/whoever/whatever.
I pray I am ok. That it isn't cancerous or even pre-cancerous. My gynae said that if the D&C shows cancer, I will need a hysterectomy within a week. If it is pre-cancerous, within three weeks. Maybe not needed at all.
"The probability (of cancer) is not great," he said.
I sat there glumly.
"The probability of getting even to this stage was small. Don't talk to me about 'probabalities'," I said.
"You are being so negative," he said. And I was shocked at that. Because during all this cancer shit and trauma in my life, I haven't been at all negative but really, I was told "Oh if it (tamoxifen) does cause anything it is very slow-growing and we will just cut it out" - neglecting to mention "and half your insides too!"
Anyway, I now have to stay calm.
It will take until about Wednesday (so I am expecting it by Thursday) to get the results.
Then I will know.
I cannot worry any more. Hope I stay this calm.
Earlier today thought: Shit, might as well just take up smoking again (haven't smoked for just over a decade but really miss, although not constantly), and gonna just take drugs and give up.......
But now. Now I feel ok. I hope I am ok. Hope. But been reading on The American Cancer Association website and atypical cells can mean it's ok. I hope and pray. Now all know that worst case scenario isn't only a hysterectomy, but also radiation, removal of lymph glands in the pelvic area and so lymphedema is my legs.
Cannot go there. Haven't done lymph massage on my arm for a week, since I got sick, and although am better now, not doing it in case I am still underlyingly ill and it brings it to the fore. Can just wait till after the operation. Then I will deal with that again.
Actually, am smiling now. It is the end of the month and I was getting hassled because two bills which should have been emailed had not arrived. Duh. Checked tonight. Not only had the bills arrived, but I had paid them both. That shows how hassled I have been. Haven't felt the same since the doctor phoned me to say the test results were not good. Now have to wait a few more days to see if I can relax and be happy again. But I have to be happy. Have to relax. If not, I will just ruin my own life.